Additional Resources
Helpful Websites
General Website Resources
Patient-Oriented Website Resources
General Website Resources
American Liver Foundation
This is a national, nonprofit organization dedicated to preventing, treating, and curing hepatitis and other liver diseases through research and education. The site includes hepatitis C-related materials designed for various populations affected by hepatitis C virus (HCV).
Centers for Disease Control and Prevention
This Website provides information about hepatitis C prevention and treatment, including fact sheets, brochures, posters, resources, an online course designed for healthcare providers, and answers to frequently asked questions on HCV and HCV/HIV coinfection.
Centers of Excellence in Hepatitis C Research and Education
The Department of Veterans Affairs Centers of Excellence site provides a variety of resources, including announcements of related news and events, information on current research patient and provider information, and contact information for Veterans Affairs medical centers.
Hepatitis Central
This Website offers a diverse array of hepatitis C resources. The Hepatitis Central Website provides information free of charge, including statistics on HCV, information on hepatitis C treatment, a hepatitis C veterans' support network (inclusive of a Website and bulletin board), and a hepatitis C information-only email list.
Hepatitis Foundation International
This foundation provides information for the general public, patients, and providers. Included on the site are fact sheets, news summaries, reviews of journal articles, and a wide array of materials such as brochures, fact sheets, and posters.
HIVandHepatitis.com
HIVandHepatitis.com provides links to recent reports on HIV and hepatitis C research. This site also offers other hepatitis C-related resources, including news stories, basic information, and treatment options. Furthermore, HIVandHepatitis.com provides information on vaccines, HCV/HIV coinfections, tests, and public policy and advocacy. A weekly email newsletter is also available.
InteliHealth
The InteliHealth Website features Harvard Medical School's consumer health information. Anyone may use the "Search InteliHealth" function on this site to search for information related to hepatitis C. A search will uncover a variety of resources, including an overview of information about HCV, access to related articles, and frequently asked questions.
The National Clearinghouse for Alcohol and Drug Information
A service of the Substance Abuse and Mental Health Services Administration, the clearinghouse offers access to hepatitis C-related information. This information may be found through a Website search.
The National Digestive Diseases Information Clearinghouse
The clearinghouse is a service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). NIDDK offers information on management of chronic hepatitis C. Among other items, this information details risk factors and transmission, clinical symptoms and signs, and a diagnosis. NIDDK also explains treatment options, as well as treatment sequelae. NIDDK also provides information on how to order free copies of hepatitis C patient education materials, including online and hard-copy brochures and information for patients. For example, NIDDK's Website provides an easy-to-read "What I need to know about Hepatitis C."
National Foundation for Infectious Diseases
This Website provides a fact sheet on hepatitis C that includes information on the scope and trends of the problem, sequelae, treatment, costs, challenges, and goals, risk groups, and research priorities.
National Institutes of Health
This Federal Government Website provides numerous general and clinical documents on HCV. Included on the National Institutes of Health (NIH) site is MEDLINEplus, which offers a fact sheet on hepatitis C, including symptoms, treatment, support groups, prognosis, and complications.
National Minority AIDS Council
The "NMAC is the premier national organization dedicated to developing leadership within communities of color to address the challenges of HIV/AIDS in correctional settings." Among other resources, the National Minority AIDS Council (NMAC) publishes a quarterly newsletter, NMAC Lifeline, as well as reference manuals and brochures. Newsletters and other publications may be searched on NMAC's Website. This Website also offers opportunities to order educational videos, attend virtual conferences, and download transcripts of video presentations and chat series.
The Treatment Improvement Exchange
At this Center for Substance Abuse Treatment Website, there is a special topic area, "Substance Abuse and Infectious Disease: Cross-Training for Collaborative Systems of Prevention, Treatment and Care." This topic addresses a new approach for care of individuals who use and abuse alcohol and drugs.
Treatment Action Group
In addition to a variety of HIV-related resources, the Treatment Action Group provides information on hepatitis and HIV/HCV coinfection.
Veritas Medicine
Veritas Medicine collaborates with the American Liver Foundation in presentation of hepatitis C-related and other liver-related information. Chinweike Ukomadu, MD, PhD, instructor in Medicine at Harvard Medical School, has written the section on hepatitis C and includes access to clinical trials on hepatitis C, a review of treatment options, an option to receive free email updates, and a guide to medical information.
Patient-Oriented Website Resources
American Academy of Family Physicians
This physician association Website provides a patient-oriented informational handout on hepatitis C, also available in Spanish.
The American College of Gastroenterology
This association offers information on treatment advances in chronic hepatitis C. This information may be located through a search for hepatitis C on their Website.
American Liver Foundation
This is a national, nonprofit organization dedicated to preventing, treating, and curing hepatitis and other liver diseases through research and education. Their Website, in collaboration with Centers of Excellence in Hepatitis C Research and Education, provides a host of publications on hepatitis C. These publications serve as online brochures, educating on various aspects of coping with and understanding HCV. To find these publications on the American Liver Foundation (ALF) site, click on "Liver Health," "Liver Disease and Dysfunction," "Hepatitis A, B, and C," "Hepatitis C," and "Veteran's Hepatitis C Publications."
Ask Emilyss
This site, by and for people with HCV infection, provides general information on HCV, research updates, editorials and articles, message boards, and links to other HCV sites.
The Centers of Excellence in Hepatitis C Research and Education
This group provides a variety of resources, including announcements of related news and events, information on current research and client advocacy efforts, contact numbers for Department of Veterans Affairs (VA) medical centers, VA-affiliated resources, and general resources for providers and patients.
National Institute of Diabetes and Digestive and Kidney Diseases
This Federal Government agency Website provides various materials, in English and Spanish, designed for patients, which include the easy-to-read brochure "What I need to know about Hepatitis C." Materials are available online for download or can be ordered in hard copy.
Veritas Medicine
This Website includes information on clinical trials, treatment, and medical research.
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